Genetic Data: Weapons or Research?

Whole genome sequencing has reached $100 per genome, down from nearly $1K over the past few years and around $1B just over twenty years ago. Furthermore, the use of microarray technology allows millions of genetic variants, called single-nucleotide polymorphisms (SNPs), to be genotyped rapidly and inexpensively. Consequently, genetic data has become increasingly available from multiple sources. Private industry is collecting genetic information, from direct-to-consumer (DTC) genetic and genealogy services to pharmaceutical companies collecting consumer and healthcare data. Data is also being generated through research funded by the United States government, much of which is made available to the public alongside other information about study participants, for example from the 1000 Genomes project and data on dgGap. Currently, two large programs seek to expand these databases: the National Institute of Health’s (NIH) All of Us program obtaining genetic data from one million civilian participants, and the Veteran Affairs’ Million Veterans Program obtaining genetic data from one million former military service members.

Artificial Intelligence and the Weaponization of Genetic Data – https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3635050

https://www.ncbi.nlm.nih.gov/gap/

https://www.research.va.gov/mvp/